Archive for category Lingo Pix

Two of Hearts: Spazzing Out

Two of hearts showing a selection of vegetablesI shiver with excitement at the coolness of the snow,
while flailing in delight at how the flakes float to and fro.
They say I shake for heating but my body seems to know
the fervor brought by white-on-white of sky and fractal tree,
and tenses itself tight on sight of all that’s cool to me.

My muscles are excited all the time, and so am I,
for music and for science and for humor and for pi[e].
They say my motor cortex might be part the reason why,
that these days they can thwart excitement through rhizotomy,
but when’s the spazzing fangirl vim and when’s it not o’ me?

In summary, my muscles have a tendency to spasm;
it seems to me those muscles can’t contain enthusiasm.
While technically I’m spastic I can say without sarcasm:
it feels like life’s fantastic and my body’s full of squee
so let your hair down (don’t relax) and come spaz out with me!

I am a raging fangirl (of improbably many people and things) with cerebral palsy spastic diplegia, and this is what it feels like. My other superhero secret identity is Hyper Spaz.

I came up with the idea for this several months ago, upon realising that my body was just as full of squee as my mind, though it was going to be a song, with an entirely different structure. I came up with the line ‘My muscles are excited all the time, and so am I’ about three weeks ago and decided to actually write it, with that as the first line, but I’ve just been too busy doing other things (including uploading videos of Jonathan Coulton, Paul and Storm, Mike Phirman, John Roderick, Zoë Keating, John Hodgman and some quitters from JoCo Cruise Crazy 3) and I didn’t spend very much time on it. So here it is, finally. It has an interesting rhyme scheme which I feel like drawing a diagram and investigating the topology of, but I think I’ll save that for later. During those three weeks I happened to find out about selective dorsal rhizotomy, which seems like a pretty neat procedure, though I wonder whether it would have an effect on the young patients’ eventual personalities.

This is the easy part of Thing-A-Week-or-so where the writer’s unblocked and the ideas flow faster than the cards that are supposed to inspire them and the time I have to implement them. I still haven’t put away all the aces of hearts and kings of clubs I got out before the cruise yet, let alone looked through all the twos of hearts, so I just used the first two of hearts I found with a tenuous connection to the topic. I’m glad I’m not a vegetable; I’ve heard their screams.

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Four of Clubs: On Hospitals and Reality

I felt like reading this one aloud. In retrospect, I should have taken the trouble to memorise it and set up a proper camera rather than recording it with a webcam while reading it from a screen. The story I refer to, which I did not actually reread before writing this, is after the break.

A card with pictograms for disability and toilets and food

When I was a teenager I wrote a story about my experience staying in Starship Children’s hospital for a while, and presented it to a writing class. I mentioned that I was somewhat glad, after several weeks there, to get back to the real world.

“But surely you can’t get much more real than a hospital,” a middle-aged woman in the class responded.

This puzzled me at the time, but I think I understand now. Reality is pain, and sickness, and IV drips, and wheelchairs, and bed pans, and rarely going outside, and machines that beep all night, and parades of doctors taking turns prodding and asking if it hurts, and teenagers who know they will not live to adulthood, and healing, and nurses at your beck and call, and surprisingly good food delivered to you in bed, and visitors that bring better food to overcompensate, and a play specialist who comes by regularly to play with you, and a games cart that comes by less often with new games, and glass lifts facing the atrium that have a view of the playground and all seven different-coloured storeys, and an in-house movie channel that shows mostly The Lion King, by request, and an in-house radio station that plays mostly Mysterious Girl and Wonderwall, also by request.

Anything else you think you experience is merely the product of your deranged imagination.

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Five of Spades: Options

Note: This is a song-like thing. Here is an mp3 of my Mac singing it to approximately the right tune, just so you can get the same tune in your head that I had in mine when I wrote it.

Feel free to make your own recording of it with human vocals and actual music if you wish. I make no claim of being musical, and I probably accidentally copied the tune from something. Sosumi.

If I can’t have this, then I’ll have that
If I can’t have a dog, I’ll have a cat
If I don’t like today there’s always tomorrow
If I can’t be Superman, I’m Bizarro
If I can’t have coffee I’ll have tea
If I can’t have a pool I’ll have the sea
If I can’t have chocolate, I’ll have cakes
If I can’t have cities, I’ll have lakes
But if I can’t have you there are no good fakes
So I’ll be very sad.

Well you can’t always get what you think that you want
But you can get something that’s just as nice
It is not very likely the thing that you crave
Will be the only thing that will suffice

If I can’t have Mars I’ll take the moon
If I can’t be first I’ll be there soon
If I can’t have shuttles, I’ll have Soyuz
If I can’t fly from you I’ll fly for youse
If I can’t have Skylab I’ll have Mir
If I can’t leave Earth then I’ll stay here
If there’s no zigazig I want all your base
If there’s no E.T. I’ll take the human race
But if I can’t have you there’s an empty space
And I’ll be very sad.

Well you can’t always get what you think that you want
But you can always want what you’ve got
It is not very likely the thing that you crave
Will be the only thing to hit the spot

If I can’t have ATLAS there’s CMS
If I can’t find the Higgs I’ll make another guess
If I can’t prove that, I’ll become a believer
If I can’t go to PAX I won’t be a reaver
If I can’t write songs then I’ll still write Things
and if my voice sounds bad my computer sings
If I can’t have Hexley, I’ll have Tux
If I can’t have a princess, I’ll have ducks
But if I can’t have you then that just sucks
And I’ll be very sad

Well you can’t always get what you think that you want
But you can always rehypothesise
It is not very likely the answer you seek
Is the only one that satisfies

If I can’t have some things I’ll have others
If I can’t have sisters I’ll have brothers
If I can’t have rhythm I’ll have rhyme
If I can’t have space then I’ll have time
If I can’t have proof then I’ll have trust
If I can’t make love then I’ll take lust
If I can’t have lovers, I’ll have nudes
And if I can’t have ladies, I’ll have dudes
But I can’t have you so we’ll have feuds
’cause I am very sad

Well you can’t always get with the person you like
but you can always find someone new
It is not very likely the one that you want
Will be the only one that’s meant for you

Well, they say there are plenty more fish in the sea
Though I don’t think they mean that literally
And while I can’t seem to stop the overfishing
I always can be careful what I’m wishing

‘Cause if I can’t be linked then I’ll be free
If I can’t have you there’s another three
And if I can’t have them then I’ll have me
And you’ll be very sad.
But you can deal with that:
Just find another lad.

Read the rest of this entry »

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